DECIDE – Development of a dynamic informed consent system for biobank and citizen science data management, quality control and integration
The scientific objective of the project is to develop dynamic consenting and survey system prototype to integrate academic research conducted in biobank with citizen science initiatives maintaining data credibility via hierarchical metadata harmonization and assessing ethical, legal and social implications (ELSI).
Informed consent is the foundation of any biological sample and data-related research in biomedicine, that is used to protect the right of an informed decision of the individual whether to take or not take part in the research. The specific form of dynamic informed consent is used to ensure that an individual participating in research can modify his or her decision about the research that is conducted with his sample and data and actively follow research results that could be of importance to him or his immediate relatives. Dynamic consent concept is especially important in case if an individual has donated sample/data to the biobank.
This November (8-10 November, 2021) I had an opportunity to take part in the Europe Biobank Week 2021 with this year’s theme “Biobanking for our Future – Opportunities Unlocked”, where I was honored to be represented in two posters as part of the Latvian Biomedical Research & Study centre team, where I work as an IT-expert. Read more…
Funding: European Regional Development Fund (ERDF), Measure 188.8.131.52 “Support for applied research”